changes

it has been two weeks

since i posted about 

{the hemangioma}

and 

you can read all the updates

{here}

but in the past two weeks we have seen significant changes!!!

here she is 2 weeks ago at her 3 month pic

shocked look as usual!

here is a close up of the hemangioma

the ulceration

(black area)

is still there but way smaller

and here she is a week ago

and today

no more ulceration!!!

and

it is measuring 1.5x2cm

so

.5cm smaller

the dermatologist was impressed

stating he didn't expect to see results for 6 months!

and we are only a month in

we still have a ways to go

but 

the important thing is 

we are headed in the right direction

she's more than the spot on her face

today we had another hemangioma appointment

and as excited as I was to post about her progress

 a part of me was very annoyed. 

 more than I would like to admit people ask about her spot

 how's it doing 

how big is it now 

and so on..... 

while I appreciate the concern

 a part of me wants to yell.... 

"there is more to her than the spot!!" 

we've had a rough week filled with appointments

 that have all turned out fine 

so a part of my reaction could be from high level of anxiety 

based around these appointments with many specialist

 however, 

i said i was going to be honest

 and my honest reaction 

when i sat down and write this post 

was 

anger

 frustration

 and sadness

 my daughter is more than the spot on her face 

she's starting to coo and laugh 

 she's fussy at night 

which as much as I hate these moments 

they are her 

and i love that

 she's getting into a routine

 which I am thankful for

 so today instead if posting specifics about her face

 because frankly i am tired talking about it

 i am simply going to post

 that we are so thankful for everyone's concern

 the hemangioma is still there,

 it's improving, 

and she is as wonderful as ever

one week down.....

here we are at the end of week one

of 

treatment for miss emerson's 

hemangioma.

this is the hemangioma at the beginning of the treatment

honestly 

i was expecting much change

since

she was only on 1/2 strength dosage

but

we did see change!!!

last week's measurements

were

2x2.5cm

and 

.8cm deep

this week 

the hemangioma looks like this

changes we've noticed

1) it looks more defined

2) the scabbing is starting to come off

3)less spidering

and the measurements are...

(drum roll please!)

2x2.2 cm

(shrunk .3 cm)

and

.6 cm deep

(shorter by .2 cm)

YAY!!

now we are on a full dosage of propranolol

and 

will go back to the doctor next week

for

a weight check

and 

more measurements!

she just found out she weighs a whopping 12 lbs.

she's my wide eyed beauty!