she's more than the spot on her face

today we had another hemangioma appointment

and as excited as I was to post about her progress

 a part of me was very annoyed. 

 more than I would like to admit people ask about her spot

 how's it doing 

how big is it now 

and so on..... 

while I appreciate the concern

 a part of me wants to yell.... 

"there is more to her than the spot!!" 

we've had a rough week filled with appointments

 that have all turned out fine 

so a part of my reaction could be from high level of anxiety 

based around these appointments with many specialist

 however, 

i said i was going to be honest

 and my honest reaction 

when i sat down and write this post 

was 

anger

 frustration

 and sadness

 my daughter is more than the spot on her face 

she's starting to coo and laugh 

 she's fussy at night 

which as much as I hate these moments 

they are her 

and i love that

 she's getting into a routine

 which I am thankful for

 so today instead if posting specifics about her face

 because frankly i am tired talking about it

 i am simply going to post

 that we are so thankful for everyone's concern

 the hemangioma is still there,

 it's improving, 

and she is as wonderful as ever