hemangioma 7 months in...

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inspired by a friend

who’s friend

found my blog on emmi’s hemangioma

useful

and inspiring

i am giving ya’ll an update!

we’ve been on the propranolol now for 7 months

and we’ve seen such a change

top pic on left 2 week after birth, top pic on right two months old and ulcerated

bottom pic on left 6 months old loving food! bottom pic right today at 9 months 

last month the base got a new dermatologist

and he was impressed

but added a new medication

{fluocinonide}

which is a topical steroid

the side effects of a steroid

are atrophy and reduce swelling

which of course is what we want this hemangioma to do

i’ve done some research on fluocinonide

and reviews are mixed on it’s effectiveness

however

it isn’t hurting her

so why not try

area measurements of the hemangioma are about the same

2x2

on average

however

it’s barely ‘swollen’

anymore

it’s almost flat against her face

the docs keep telling me to be patient

and it appears

this hemangioma is on a five year plan

but

overall the results are great

 we will continue with therapy

and

just be patient

hope those who have infants with hemangiomas continue to find hope

and inspiration

in other’s stories

love love from aviano!